Download Death or Disability?: The 'Carmentis Machine' and by Dominic Wilkinson PDF

Download Death or Disability?: The 'Carmentis Machine' and by Dominic Wilkinson PDF

By Dominic Wilkinson

In historic Rome mom and dad could seek advice the priestess Carmentis presently after beginning to procure prophecies of the way forward for their baby youngster. this day, mom and dad and medical professionals of seriously ailing kids seek advice a unique oracle. Neuroimaging presents a imaginative and prescient of the kid's destiny, fairly of the character and severity of any incapacity. in line with the result of mind scans and different exams medical professionals and fogeys face heart-breaking judgements approximately even if to proceed in depth remedy or to permit the kid to die.

Paediatrician and ethicist Dominic Wilkinson appears to be like on the profound and contentious moral matters dealing with those that paintings in in depth care taking care of severely in poor health youngsters and babies. while should still babies or teenagers be allowed to die? How exact are predictions of destiny caliber of lifestyles? How a lot say should still mom and dad have in those judgements? How may still they take care of uncertainty in regards to the destiny? He combines philosophy, medication and technological know-how to make clear present and destiny dilemmas.

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Extra resources for Death or Disability?: The 'Carmentis Machine' and decision-making for critically ill children

Sample text

The illness is diagnosed in infants who need resuscitation after birth, who subsequently manifest abnormal neurological behaviour (for example they are excessively irritable or drowsy, or have seizures), and who have some presumptive evidence of perinatal hypoxia (lack of oxygen) or ischemia (lack of blood supply). 36 PART I Moderate or severe forms of HIE are associated with a high rate of mortality and morbidity. Approximately 15 per cent of cases die in the neonatal unit, 10–15 per cent develop cerebral palsy and up to 40 per cent have other impairments including blindness, deafness, autism, or global developmental delay (Volpe 2008: 441).

Decisions not to save the life of patients because of concerns about quality of life are relatively common in paediatric and neonatal intensive care. In two recent studies in Switzerland and the Netherlands quality of life was a significant influence on end-of-life decisions in 40–50 per cent of deaths (Berger and Hofer 2009; Verhagen, Dorscheidt, et al. 2009). In earlier studies from Australia and the United States, withdrawal of mechanical ventilation was motivated by quality of life concerns in 30–40 per cent of cases (Singh, Lantos, et al.

Should the Baby Live? The Problem of Handicapped Infants. Oxford: Oxford University Press. , S. Cousens, et al. (2005). ‘4 million neonatal deaths: when? Where? ’ Lancet 365(9462): 891–900. , K. Tieves, et al. (2010). ‘Alterations in end-of-life support in the pediatric intensive care unit’, Pediatrics 126(4): e859–64. A. (1974). ‘To save or let die. The dilemma of modern medicine’, JAMA 229(2): 172–6. E. W. Fowlie (1996). Life, Death and Decisions: Doctors and Nurses Reflect on Neonatal Practice.

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